Trick or Treat

I look forward to Fri. because it normally means a weekend without having to go see Dr.s. Sorry Dr.s but after a while visiting with you is sometimes depressing. Take today for example. I woke up not feeling well but then I am on day +21 after transplant so do not expect to feel great yet. I get to ITA and you tell me I am running a fever and my magnesium, potassium, albumin, are all running low. In fact, so low you are amazed that I am not having seizures or serious heart trouble. Oh, I think and finally say is that why my heart is having pain and racing....yes. So I get in at 8 and after 3 bags of magnesium and 2 potassium and seeing the Dr. and getting labs done I leave at 1:00. Not the longest day but a crummy day. Came home and slept till 5. This being Halloween weekend is this the "Trick or Treat?"

Another day in ITA

Today is Wed, and it is a beautiful clear day outside. Woke up feeling pretty good this morning all ready for Stanford today. It is going to be a long day here. Magnesium is so low they are giving me three bags IV, Potassium 1 bag IV and some fluids as well. Most of my other numbers are looking pretty good. Getting use to the fluctuation that happens with each test. Need to keep the focus on the future and not just day to day.
I almost feel like I am in Kindergarten again. They come around with a cart and give juice and graham crackers. Warm blankets to snuggle in for nap time. Right now there is a guitarist who is playing soft soothing music as well. I think they are trying to make us feel spoiled. The only thing I know for sure is that it is making me very sleepy so......snooze, snooze.

No boundaries

Sorry for so long a time between post. I am hanging in there and dealing with all the little and sometimes big side effects from the medicine and or the proceedures. The radiation burns in my throat and stomach are getting better with all the meds. they are giving me to help. That makes the swallowing and eating easier which makes me happier. Rebecca has been a joy to have here helping me keep things straight. I now have around 20 new meds. to keep straight. I am in a trial here that is very simple but it is a new anti viral med. put out by Bayer made all the way in Germany. Cancer seems to know no geograhical boundries. My new bone marrow came from an international donor as well. So it seems the whole world wants a cure for cancer or at least wants to make the cure easier. After spending so much time here it also has no boundries on race, age, intellect, economic status. There are so many different types of cancer being treated here as well. I am glad the Lord has let me come to such a good place for treatment. Most of the staff are very caring and they remember my name and how I am doing and are very encouraging.
Roger is taking over the caregiver role as of this weekend when Rebecca goes home to her very unselfish husband and dog. They have both missed her very much. I will miss her when she goes!
Well, I am getting tired now so need to close this down for today. I just learned how to get my computer online while at the hospital so hope I can keep the updates coming...besides I am feeling better as long as I don't try to do to much. Thanks for all the prayers and support.

A very long week

Today is the first day that I have felt apart of the human race again. It is the first day that I have been able to stay awake without feeling like I want to fall asleep. It is also the first day I have not run a fever which is one reason I feel better. I have begun week two which is filled with radiation and then the transplant on Fri. It seems that we can now get to Stanford in our sleep - since we have traveled there sooo many days in a row. My caregiver for the next 3 weeks is Rebecca. I am glad for her organization and company! It is nice that her husband was willing to share her.
Georgia is doing well with her new family of 6. The puppies have begun to open their eyes and they are adorable to watch. I will try to post a picture of them soon.
Thanks to all who are praying me through this and for those who have volunteered to feed my family at home.